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Giving patients granular control of personal health information: Using an ethics “Points to Consider” to inform informatics system designers
Electronic health records Ethics Medical records systems Computerized Patient access to records Physician–patient relations Privacy
2014/11/17
OBJECTIVE: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies...
Patients In The New Economy: The“Sick Role”In A Time Of Economic Discipline
Patients The New Economy
2009/12/3
From the anonymous victim of epidemics as collective
scourges, from the traditional image of the alienated and
passive "patient" to the "self-provider of medical care" as a
new cultural figure, to ...
Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?
medium interview
2008/11/14
Background
Contradictory evidence exists about the emotional burden of participating in qualitative research for palliative care patients and carers and this raises questions about whether this type ...
Attitudes and behaviors of Japanese physicians concerning withholding and withdrawal of life-sustaining treatment for end-of-life patients: results from an Internet survey
Japanese physicians withdrawal
2008/11/13
Background
Evidence concerning how Japanese physicians think and behave in specific clinical situations that involve withholding or withdrawal of medical interventions for end-of-life or frail elderl...
Survey of the general public's attitudes toward advance directives in Japan: How to respect patients' preferences
patients' preferences Japan
2008/11/12
Background
Japanese people have become increasingly interested in the expression and enhancement of their individual autonomy in medical decisions made regarding medical treatment at and toward the e...
Consenting of the vulnerable: the informed consent procedure in advanced cancer patients in Mexico
vulnerable cancer patients
2008/11/12
Background
A topic of great concern in bioethics is the medical research conducted in poor countries sponsored by wealthy nations. Western drug companies increasingly view Latin America as a proper p...
Consensus guidelines on analgesia and sedation in dying intensive care unit patients
analgesia sedation
2008/11/6
Intensivists must provide enough analgesia and sedation to ensure dying patients receive good palliative care. However, if it is perceived that too much is given, they risk prosecution for committing ...